About Dystonia Europe

Dystonia Europe is the umbrella organisation for national dystonia patient associations in Europe We offer a platform at the European level for everybody with an interest in dystonia and we work together with:

• patient advocacy groups
• medical students and junior doctors
• healthcare professionals
• researchers and scientists
• movement disorder specialists
• pharmaceutical and medical device industries

Vision & Mission:

Our vision is better quality of lives for people living with dystonia in Europe while supporting the search for a cure through the following core activities:

• Raise awareness and be the leading voice in Europe on the impact of Dystonia.
• Share the knowledge – provide the latest information and resources for our members and also be the source of information for the other stakeholders.
• Connect people with Dystonia, member organizations, healthcare professionals, European policymakers and the treatment industry to close the gaps of today’s dystonia treatments.
• Foster training and education and educate multi disciplinary teams and stakeholders along the dystonia journey to optimize care and improve quality of life.